Lung Foundation Australia is launching an Australia-first paediatric program created specifically to help families and carers of children with a rare lung disease.
The Young Lungs program focuses on connecting and supporting families who have a child with a rare lung disease such as Primary Ciliary Dyskinesia (PCD), congenital diaphragmatic hernia or children’s Interstitial Lung Disease (chILD).
Young Lungs Expert Advisory Group Chair Professor Adam Jaffe, said the new program would develop information to help parents with the common issues they may face when their child is diagnosed or is going through the process of diagnosis for a rare lung disease.
A new report released today reveals lung disease contributes to more than 10 per cent of the overall health burden in Australia.
Lung Foundation Australia CEO Heather Allan said the report, prepared especially for Lung Foundation Australia by the Woolcock Institute of Medical Research, summarises in one place and for the first time, information about the overall prevalence, burden and impact of lung disease in Australia.
Mrs Allan said that, while statistics on various lung diseases are collected, they are not necessarily reported together.